Living with Lupus or any chronic illness is different.Yes there are some days when I don’t want to see anyone and need to lie low and relax. I am not apologizing for living my life as a happy and successful 28 year old woman.
Having an invisible illness definitely has its struggles. I am not physically disabled, so why do I need accomodation? When boarding an airplane, they allow anyone who needs extra time to board the plane first…..I can not tell you how many times I have done this and have been questioned WHY. I, of course don’t have to them anything and they legally are not allowed to ask me what me disability is, but it is still hard. My husband is the most amazing advocate and sticks up for me when I am too proud.
That is my biggest struggle. I am proud. I was a healthy person for the first 18 years of my life and could do anything and everything, including dancing and singing for sometimes 8 hours a day! Now, I can barely walk to the mailbox some days without pain. BUT, when do feel good, I want to run to the mailbox and not feel someone is wondering if she was faking it this whole time.
Sadly, it is the just the world these days and chronic illnesses are not widely known or accepted. This is my entire goal of telling my story. The world needs to be more aware that there are SO MANY invisible illnesses. Just because you can’t see it, doesn’t mean I am not suffering and need your help. It is a hard thing to say but if someone if diagnosed with cancer, they either live or die. If you are diagnosed with a chronic illness, you are dealing with it for life. YES, some people are lucky to go into remission and me free of symptoms for a long period of time, but that is very rare.
So, I make a point to be accommodating to anyone I see that needs help. Whether is be a mother in the check out line with screaming children or just holding a door open. In the south is truly is second nature, but I have been told from friends in the North that they don’t remember the last time someone help the door open for them. Help the people around you and in your life. You have no idea what they are going through that day, and it could really make a difference.